Google
Trusted Resources: News & Events
Latest announcements and gatherings
Rare Disease Day at NIH 2023
Rare Disease Day® takes place worldwide, typically on or near the last day of February each year, to raise awareness among policymakers and the public about rare diseases and their impact on patients’ lives. Each year, NCATS and the NIH Clinical Center sponsor Rare Disease Day at NIH as part of this global observance. Rare Disease Day at NIH aims to raise awareness about rare diseases, the people they affect, and NIH collaborations that address scientific challenges and advance research for new treatments.
The Goals of Rare Disease Day at NIH Are to:
• Demonstrate the NIH commitment to helping people with rare diseases through research.
• Highlight NIH-supported rare diseases research and the development of diagnostics and treatments.
• Initiate a mutually beneficial dialogue among the rare diseases community.
• Exchange the latest rare diseases information with stakeholders to advance research and therapeutic efforts.
Date & Time:
Tuesday, February 28, 2023
9:00 AM to 5:00 PM EST
This event has ended.
+myBinderRelated Content
-
Sickle Cell Foundation of TennesseeThe Mission of The Sickle Cell Foundatio...
-
Ade AdeyokunnuAde Adeyokunnu manages the day-to-day op...
-
Blessed Miracles FoundationBlessed Miracles Foundation, Inc. is a n...
-
Lametra Scott, PharmDDr. Lametra scott is the founder of Brea...
-
@sicklecelldocTwinmom, wife, and pediatric hematologis...
-
Sickle Cell Disease Association of America, Inc.SCDAA provides leadership on a national ...
-
Sickle Cell Disease Association of Florida, Inc (SCDAF)The Sickle Cell Disease Association of F...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Powered by
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.